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Brain Fuzzy
Epilepsy With a Sense of Humor
Good Afternoon 
29th-Apr-2012 03:18 pm
I am 25, almost 26, and was diagnosed three months ago.  I have partial seizures that are resisting treatment, my short term memory is disappearing fast, I break down a lot and go into states where I don't move... maybe catatonic?  I don't know.  I blank out in the middle of conversations, and I get dizzy every time I stand up.  For now, I can manage work.  If I get it stable, maybe I can get some of my brain back.  I am grateful for my brother and boyfriend who take me to work, I am grateful I have not been fired, but I still need places to vent.  If you'll have me, then congratulations!  You have been chosen to receive my various complaints and expletives!

I am fuzzy brained and have earned the purple ribbon of life!

I am very pleased to meet all of you.
29th-Apr-2012 10:19 pm (UTC)
Not catatonic - just a type of partial seizure.
I know all about hard to control - I have asthma also and the stimulant meds like albuterol do not help.
When I have a seizure while talking it causes me to stutter. I get stuck on a sound/silable/word and can't stop or move to the next. I am sure plenty of us understand what you are going threw.
30th-Apr-2012 02:06 am (UTC)
Ah thanks for the info. I don't understand a lot of what's going on with me, kind of why I'm glad to be in a place where I can learn from others' experiences and vice versa. I've read the research out there, but with such a broad category, you can only learn so much from the dictionary version of things.

So here I am. Hello.
30th-Apr-2012 02:31 am (UTC)
There are web sights dedicated to the issue that list all sorts of possible symptoms. I've had it and the asthma all my life.
The brain tramma the caused mine was at birth - I am lucky to be dealing with the health issues. I was severely premature and had to be ressesitated.
Strange thing to think about. 10 weeks too soon and not breathing or pulse in 1973.
Most doctors wouldn't have bothered.
I got really lucky.
30th-Apr-2012 02:15 am (UTC)
The partial seizures with the zo ing out... It sucks. That's my main type of seizure, and it happens frequently. I have some convulsives in my sleep, but usually not. Welcome to the group, though the reasons suck. Sendingyou love.

30th-Apr-2012 04:50 am (UTC)
Particularly when someone is talking to you.
In one instance in high school it seamed like the guy I was with went from talking about a friend acrost the hall to saying something about Eddy.
I had no idea he had shifted over to favorite music groups (Iron Maiden) when I asked Eddy who?
1st-May-2012 01:27 am (UTC)
Thank you and nice to meet you.

I have a lot of difficulty with it myself. I will skip parts in conversations all the time, and people think I don't care or am uninterested when I ask questions that they already answered. I think once my friends get used to it, it will be okay, though. I'm hoping to learn to make light of it, but I'm not sure how to go about it.
30th-Apr-2012 02:36 am (UTC)
Welcome to the group :) I have partial seizures, so I know where you're coming from...I agree, the zoning out sucks. Mine are controlled well by medication thankfully, but when I do have them, I have a very strong aura of fear right before which is awful. I have them in my sleep a lot (when I am having seizures) and the aura kinda gives me night terrors. It stinks. However, things could be a lot worse so I am thankful. If you need someone to talk to, please feel free to send me a message (the same goes for friending me).
30th-Apr-2012 04:55 am (UTC)
I have them every night when sleeping.
Some times I am up late because of the shakeing.
The sort I hate most are the ones that make you sick. Uncontrolled heaves are not fun - expecialy when your shaking the entire time.
I once ended up in a psych ward for a weekend because they did not realize what was going on. They thought I was severly depresed and intentionaly hitting the wall with my head and yanking hair ( what the person who took me too the ER sead was going on ) I have no recolection of that night.
1st-May-2012 01:36 am (UTC)
Thank you for your kindness. I am new to this and still have hope for medicating myself into normalcy. There are no guarantees, but I am most grateful for what I have accomplished thus far. Even should my health continue to fail, I have had many healthy years and am grateful for them.

Whatever happens, I will be grateful for the companionship that I think I am already finding here.
1st-May-2012 03:30 am (UTC)
It's important to keep hope! Often times it is just about finding the right combination or combinations of medications. It's a stressful thing, but keep your chin up. It makes me so happy to see that you're receiving kindness and support...we should all try to be there for each other! Keep us updated on how you are doing.
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