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Brain Fuzzy
Epilepsy With a Sense of Humor
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19th-Oct-2010 09:08 am - Hello
I have asthma and epilepsy - most simple seazers.
I was wondering if anyone else here has to deal with both? if so How well are the two managed?
I'm on depikote for the seazer and symbacort for the asthma with zopinex for a rescue med for the asthma.
The beta2 antaganists that are part of the asthma med dont mix well with my nurological short circut. I find that the depikote does a decent job controling the seazers - as long as I dont use my asthma meds. Otherwise it mostly runnning interferance keeping the severity and frequincy down.
I always know when I'm in for a bad day. Every thing feals wonky. Like Im being stretched and compresed at the same time.
24th-Nov-2009 10:42 am - Performance Art?
Marcalo, the artistic director of a Leeds-based dance theatre company, Instant Dissidence, has been epileptic since the age of 17. She stopped taking her anti-convulsant drugs last week and for 24 hours, from 1pm on December 11, a paying audience will watch her attempts to bring on a fit.


I have a number of different reactions to this but up there is amusement that some comments border on suggesting she is a "class traitor", and thinking good luck to her if she can secure a grant to do this.
16th-Feb-2009 08:52 pm(no subject)
soooo I've got epilepsy,
good times

not slways

I'm a canadian and work at a lab doing gas chromatography.   It is basically chem with a wrench..  Like this matters.  Anyways I am in the middle of deciding whether to switch drugs.  Has anyone here taken time off work / medical leave to switch meds?  we don't have the ADA or whatever the USA has.  Actually i'm not even sure what we have.

I think it would be safer If i wasn't at work.  I have switched megs before and it is not an easy thing to do, and still remain 'sane/functional at some jobs.

what do I do??
hear music you've never heard before?
flashes of light?
numbness on half of your face, sometimes going down to your arm?

my neuro seems to think this is all seizrue related. still getting an mri and another eeg just to make sure.

does anyone know why i'm having a second eeg after only several months? the neuro is insisting on it, and i'm curious as to what different it might show, or if this will give her more clues.

kittyn moon
Dear Friends,

We are extremely happy to report that today the US Senate unanimously
passed the Americans with Disabilities Act Amendments Act.

The bill corrects court decisions which claims that a person with a
chronic condition cannot utilize the ADA as a defense
when one loses his or her job because of their condition.

The House passed a nearly-identical version of the bill on June 25,
2008. The House must now pass the Senate version of the bill before
it is sent to President Bush for his signature.

"I am pleased that the Senate has...passed the ADA Amendments
Act," said House Majority Leader Steny Hoyer. "This bill
will once again make America a world leader on a central test of human
rights. I expect the House to pass this bill next week, and that the
President will sign it."
9th-Jul-2008 01:34 pm - neuro update
just got back from the neuro. she still hasn't told me what kind of seizures i've been having.

she chalked up one that i described specifically to a panic attack. i told her very clearly that no, it wasn't. why? because it didn't follow the logic of a panic attack. it's what happened before the seizure. sure, i felt anxious beforehand, but in retrospect that was a warning of what was soon to occur: numbness crawling up and down the legs, confusion, lightheadedness, reduced bladder function and then extreme fatigue.

as well, i told her that i compared  notes with peers here who have seizures and they told me it was probably an attack.

now, why doesn't she have a clue, as a neuro who has been trained and works with people with epilepsy to prescribe them meds? i'm rather baffled. she's still prescribing me sezire meds, based on the eeg.

i'm amazed.
25th-Jun-2008 12:42 pm - ADA request
kittyn moon
I have the paperwork requesting i work for home for 4-6 weeks while I get used to the side effects from topamax. I am very nervous about filling out the paperwork. If I put in something wrong, I may get denied.

It asks do you believe it to be permenant or temporary. Well the condition is permenant, but who knows about what will be permenant or temporary. If it is temporary will they decline me? If it is permenant will they decline me? This is all very scary and confusing.
23rd-Jun-2008 10:37 am - ADA Epilepsy
Dear Advocate,

Please remember to join disability advocates from across the country for the National Call-in Day on Tuesday, June 24th to support the ADA Amendments Act of 2008. We need your help to make sure the bill becomes law.

The ADA Amendments Act will expand protections under the Americans with Disabilities Act and reverse judicial decisions that permit job discrimination against people with epilepsy. The bill is strongly supported by the Foundation as well as experts in the disability community, business and employer groups, Members of Congress, and congressional staff.

We now need your help! Our goal is to have the ADA Amendments Act passed by the entire House of Representatives with no amendments. You can help by calling Rep. Virgil H. Goode, Jr. on Tuesday, June 24 with the following message:

"I am calling, as a person affected by epilepsy, to express my strong support for the ADA Amendments Act of 2008. This bill would protect people like me and is supported by the disability and business communities. I urge Rep. Virgil H. Goode, Jr. vote in favor of the bill without any amendments and without a motion to recommit!

You can reach Rep. Virgil H. Goode, Jr. at (202) 225-4711 or (540) 484-1254.

Additional background information is available below.

Thank you for joining in this national effort to pass the ADA Amendements Act and protect people with epilepsy from employment discrimination!


The Americans with Disabilities Act has transformed the nation since its enactment in 1990. The ADA was intended to protect people with disabilities from discrimination at work and in public life.

Unfortunately, court decisions over the last decade have excluded individuals who should have been covered under the ADA. These judicial restrictions block people with conditions such as epilepsy, diabetes, multiple sclerosis, cancer, heart disease and bipolar disorder from seeking protections against employment discrimination under the ADA.

The ADA Amendments Act of 2008 will re-establish these protections. This legislation is supported by over 40 national disability organizations - including the Epilepsy Foundation - and many key business associations such as the U.S. Chamber of Commerce, the National Association of Manufacturers, the Society for Human Resource Management, and the HR Policy Association.

The ADA Amendments Act of 2008 will:

* Amend the current Americans with Disabilities Act so that the effects of "mitigating measures" such as anti-epileptic drugs (AEDs), could not be used in determining whether an individual is disabled.

* Makes it clear that Congress intended the ADA's coverage to be broad, to cover anyone who faces unfair discrimination because of a disability.

* Clarifies the current requirement that an impairment substantially limits a major life activity in order to be considered a disability. The legislation provides a reasonable standard that will give clarity to employers and access to protections from unlawful discrimination for people with disabilities.
I have been having weird episodes with memory loss, ringing in my ears, problems with words, and strange smell/taste problems and headaches afterwards. I have had migraines, still do - more so with the episodes. The headache after the episode is in the base of my skull area.

The neuro does not really know if it is migraines or seizures, so I had my EEG at UVA yesterday.

Wow, the EEG really sucked. It was very disorientating and my head was splitting afterwards. I still feel icky today. The strobing lights really made my eyes twitch and I had trouble keeping them closed for the test. The strobe light created some very interesting patterns and hallucinations, though.

I really hate waiting for the results. They would not tell me a thing.
27th-May-2008 08:09 pm - after seizure episode question
after my last seizure (for 2-3 days) i tend not to feel quite right. strange thoughts or ideas pop in the brain that are rather uncharacteristic otherwise. other notes: kind of spacey/'out of it', and feeling disconnected from myself and others... like watching a boring b movie with me and others in it. also, at some points within this 'after' period, i feel 'on edge' but it's a nebulous feeling with no distinct cause that often leads to a free floating frustration. this is different from the feelings of intense anxiety or doom that i apparently got as an 'aura' before this last episode.

do any of you feel this way afterwards? how long does it last, on average, if so? what does recovery mean for you?

or, could this possibly be the continuation of seizure activity?

sorry for all of these questions. being dx'd with seizures at almost 30, i'm trying to fit the pieces of personal puzzles regarding past irregularities and current phenomena that i attributed to being artistic or different, but (i think) might have actually been seizure episodes.

my neuro isn't much help, as she is swamped with patients and the next appt is july :/. anyways, already your responses have been waaay more helpful as you experience these things firsthand.

thanks for any comments----
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